back some steps..

Our good day did not last for long.... Jacob is back on the breathing tube. :( Friday was not a good day at all. Everything slowly was getting worse and worse. His little body was using so much energy to try and breathe and it was just too hard for him. The heart was working so hard, and was not able to adequetaly pump blood and oxygen throughout his body. Jakey's hands and feet were getting cold again and he was turning a paler gray color, so they had to put the breathing tube back in. That way his body doesn;t have to work so hard.

So now is sedated and stable and has been this way for the whole weekend. Poor little guy. We are in a state of not really knowing what is going to be happening next. The stomach x-rays are looking better, so that is good. The general surgeons (for his stomach/bowels) said that they are signing off on doing surgery for now, so his heart surgery can take place when Dr. Galantowicz feels he is ready. Than after the heart is complete and Jakey starts eating orally the general surgeons are going to come back into the picture to do tests and make sure his bowels are completely okay.

For now we are just waiting to hear from the cardiologists and the surgeon to see when they think Jacob is ready for surgery. There are advantages to doing it sooner than later.... like obviously heart function, and for him to get off the breathing tube... but at the same time we want to make sure he is fully recovered from his infection and also build up his blood count. His hemoglobin has decreased from 18-12.9 since we have been here, so that is not good.

Just taking one day at a time. It doesn't matter how long we are here, as long as Jacob gets to come home with us when we leave!

We are having wonderful love and support from our family and world wide brotherhood! But of course I miss home like crazy too. Love to you all!