Power of a simple gift to bring cheer to someone that so deserves it!

After much thought on what to do in honor of Jacob. We thought that what we really wanted was to bring alittle joy to the children at the hospital that are enduring so much and are so very strong. When we were in the hospital there was a few times that people came in and distributed gifts for Jakey and I just thought that was so nice and it really made my day. So in hopes of putting a smile on some faces, this is our plan.....

Jacob’s Heart of Love

In memory of our dear baby boy, Jacob, we will be raising funds and accepting gifts to create “fun packs” for the boys and girls at Nationwide Children’s hospital.

Anyone who has had a stay in a hospital knows that it is not fun! It can be scary, especially for children. So please help us spread some happiness! There are about 300 children at NWCH. Some stay the day, some weeks, others months.

People from all over the world travel to this hospital because they have techniques to conserve blood and have successfully done bloodless surgeries that others hospitals say are impossible!

On August 23rd, the anniversary of Jacob’s death, we will be returning to Columbus Ohio in memory of him. While there we will be delivering these fun packs to amazing children and their parents. If enough money is made we also have hopes of purchasing a wagon for the children at the hospital.

If you would like to contribute at all please send donations to:

P.O. Box 28884

Milwaukee, WI 53228

or contact me for others arrangements MsJeners@aol.com

NWCH Wish list can be found at: www.nationwidechildrens.org/wish-list-for-donations

Ex. Baby Rattles, mirror books, coloring books, travel games, puzzles, small lego sets, lotions, journals...

No food or snacks

No used toys

Must fit in about 8 by 10 gift bag.

*This is something our family is doing personally, but all donations will 100% be going for the children at the hospital. *

As of April 16th- the things I am looking for mostly are coloring books, and gifts for 18m-4 yr old boys and girls. Thank you for all your help.

2009 is coming to a close

2009 has been one long roller coaster of emotions of a year. It will forever be the best year of my life since I got to have my dreams come true of 3 beautiful children. But at the very same time, the absolute worst year of my life by far. My dreams were crashed into pieces way too quickly. And I miss baby Jakey so much every single day. Nothing is even truly enjoyable anymore, because how can I be having fun without Jacob with us? My heart will forever be broken until our family is all together again.

Jakey would be almost 9 months old now. I am in Florida as I type (everyone else is sleeping), but everytime I see a baby in a stroller I want to cry... I should be here with a stroller and a baby who is trying to climb out of his chair! Who doesn't want to sit for the shows... who is cute with his chubby little legs. It is simply not fair what poor little Jacob had to go through. He endured so much pain. When I even think back to his time in the hospitals, my stomach aches. Poor little guy never got to experience things that we all take for granted everyday. Even just cuddling with your baby. He was looking up at me with those scared little eyes and there was nothing I could do for him. I couldn't take away his pain, I couldn't even hold him.

I know so many others have been through similar things and are going through them and others have it much worse and I just feel for each and every one of them. Be strong all you sweet innocent babies and you loving mamas and dadas.. be strong.

Our family is going to be going to Jacob's "home" Nationwide Childrens hospital on the anniversary of his death in August and when we do we want to spread some cheer to deserving boys and girls and their families. I have a lot of ideas floating around in my head, but I will let you all know when I am for sure on an idea.

My others children are up, so I got to wipe my tears and be done for now. I think this was therapeutic for me today though.

love my 3 boys forever

Yesterday morning at 4:50 am Jacob Miguel Robles passed away. He was the strongest and bravest little boy I have ever known. He was a fighter, but his heart was just too weak and he could not hang on any longer. But he fought hard until the very end. And I am so thankful to Jehovah for allowing him into my life and to be able to have him, even though it was just for a little while. I am also thankful for our suergeon in Coloumbus Ohio, because without him I would not have had Jacob at all.

The doctors were amazed at this strength and how he lasted as long as he did and was able to be home with us, even though it was only for a short time. They said, they have never seen a family who loved their little baby so much and they felt that is why he was able to fight as long as he did. So thank you to all of you who showed so much love towards him. Jacob had a worldwide brotherhood all praying for him and helping him through.

Thank you also to Nationwide Children's hospital for doing all they could and for so much love they showed for jakey and our family.



Jacob's funeral is going to be this Saturday, August 29th at 2:00 pm. At the kingdom hall of Jehovah's Witnesses located at 12165 W. Layton Ave. Greenfield, WI 53228.

Mother's intuition is never wrong.

So, my long day turned into a long night and a longer following day and so on...

I knew things weren't going good. I could feel it. And sad to say, its hard to put into words where we are at today, because writing it down will make it real.

Yesterday night, Jacob's stats were dropping into the teens. The doctors found out that his left lung collapsed. So they inserted 2 additional chest tubes in hopes that draining the air and fluids around the lungs would help some. But nothing seemed to be working... his stats went up to 30s, but that is still way too low.

Long story short.... basically there is nothing else that the doctors can do for Jacob medically. They are giving him comfort care, so that he will not have pain. But his heart is just too sick. Poor guy, not only had half a heart, but the right side suffered a heart attack and is not squeezing properly. He is very, very sick. The doctors have done all they can. But his body is not recovering from surgery. His heart function is still bad, he is swollen even more than yesterday, he still has lots of bloody discharge from his 3 chest tubes.

So at this point, they said bring any family in who wants to say good-bye to him. He is a fighter and still hanging on today. But things look very, very bad.

My heart and head hurts too much to write details at this point.

LONG day

Yes, today was a very long day. Dr. Honest was not looking me in the eyes again. That is never a good sign.

Nothing major has been going wrong. All the doctors are saying, he's doing okay, ...blah ...blah..blah...BUT a lot of little things have been NOT good. And when Dr. Honest can't look at me, I know the truth.

First off, Jacob has a fever again. The boy's pattern is whenever he gets mad, his fever goes up. He is a fighter, and gets mad easily when people are messing with him. But when fever hits 101, they start him on antibiotics and take labs and urine to check for an infection. So it will take 3 days to find out the results.

Also, since he is still super swollen in his head, chest and arms, the surgeon came in today and said we will not close his chest till Monday. Monday??? That is like 5 days away! That can't be a good sign. Yes, let's just let him sit here with an open chest! What about infection? I was originally told 3-5 days open, not 11!!!

Number three, when his lungs are suctioned they are pulling out blood... fresh red blood!!! And later in the day blood was in his mouth. Oh, don't worry about it says the nurse. This happens sometimes. As long as its not dripping from the mouth she says! Again are they joking??? And his blood count is now 9! It was 11 Monday.

Than his fingers on his left hand- 2 of them turned purple, dark purple. So they had to take out his arterial line. They better not have to put that back in because that was not a fun procedure for him either.

Hmm... I'm trying to think what else went wrong today.... His stats are still low. In the 60s. Oxygen the brian and kidneys are using is still low- in the 30s.

So I was crying today... lost it a little in the consultation room. But I think I have good reason. Even though no body else does! The surgeon surely thinks things are fine. "Why do you look sad today?" Hmm.. lets see.....

"Things are good." he tells me.

Anyways.... Thanks for letting me vent a little. Hopefully tomorrow my roller coster of emotions will be traveling back up. I'm sure it will be, thats just how things are going here.

So here is a picture of Jacob today.

Doctor honest keeps coming in and out of Jacob's room. So I am getting a little bit nervous here. Jacob is still holding a lot of fluids, but this blood vessels are getting dehydrated. So he is kinda in a bad spot right now in this area. Also his oxygen stats are still down. So the docs are playing with his meds and the respiratory machine trying to see if they can do anything to help.

Hope our baby boy can start making some positive advancements soon. He has just been pretty much stuck here in the same spot for a few days, and that is not good. We need to get to the next step of closing his chest.

"a little bit good"

According to my honest doctor, Jacob is doing "a little bit good, but he isn't out of the woods yet."

During rounds this morning the doctors were talking a little too long at our door way, so I was getting a little nervous. But it turned out to be okay, thanks to our nurse, Julie, who isn't afraid to disagree with the doctors for us. :)

They were worried about Jacob's oxygen stats.... they have been all over the board lately. He is going from 50s-80s. But again, as he loses fluids, that should help. The doctors did take him off a med today for his blood pressure. And they reduced how much respiratory help he is getting. Now he is at 55% oxygen instead of 100. So we have been making steps in the right direction.

Dr. G came in today and he said it should be about 3-5 days before Jacob will have his chest closed. And another 5-7 days until he is off the respiratory machine. So he estimated about 2 weeks in the ICU. But who really knows? We can't plan too much into the future, for each day has its own anxieties. And we need to get through today, before we can worry about tomorrow. This is something I need to work on.