Its coming...july 30th 2009

Yesterday we met with our surgeon who is thankfully back from his trip. He was more optimistic about Baby Jakey's condition. Basically, he agreed that things have gotten worse. He brought up heart transplant, but said to him that is something he keeps in his back pocket as the absolute last resort. He feels he can do the surgery, but it will be riskier than we originally were told and planned. Giving it about 85% success rate. Hopefully once the surgery is done, Jakey's heart function will improve. Because the load on the right side of the heart will be lessened.

A major concern is a leak in his triscipic (that is the wrong spelling?) valve. It has always been there, but is getting worse. To fix this, it will be a whole other part to the surgery. Maybe better heart function will improve it, but maybe not. So the surgeon is going to make the call when he is in there and can see exactly what the heart looks like.

So for the leakage it is better it have the surgery now, but for the normal stage 2 for HPLH it is better for Jacob to be closer to 6 months. So we are going to try to wait a few weeks yet and than his surgery will be.

We were told, the doctors are comfortable with us going home for a little bit, so we will be back this weekend. And depending on how things go at the doctor Tuesday, we will see what we will do.

Hopefully this made sense. Sometimes its hard to explain everything that we were told.

It is very scary thinking that Jacob is going to have to have surgery again. He is developing into such a happy, chubby 3 month old... its hard to even get my mind prepared for what will be my reality in 2-3 weeks. But I know Jehovah will help us through, as he has been so much already.

Oh, kinda funny thing is that all along we have been trying to get Jacob to eat because we need him to gain weight right? Well the surgeon told us today that for better blood conservation, he doesn't want him over 6 kilo. (he is 5.7 now) So we are like, wait? So we no longer want him to gain weight? We have been forcing him to eat all along, and now we need him to just maintain for the next weeks. Okay, maybe it is not all that funny. But I thought it was because in my mind getting him to eat was my main concern. :)

Overall though, it has been a nice time in Ohio. My cousin Emily and the kids came for a few days and we did some fun things. We also had a chance to go to the Greek convention for a day, and be with our family. (it was in Ohio.) And the hotel we are at is pretty nice, downtown. Super nice people here. I tell the boys we are like the Disney show, "Suite Life of Zach and Cody." So they love that.

That's it for now. Please keep us in your prayers.....