So why since we have been in the hospital things for Jacob have gotton so much worse? Isn't it supposed to be the opposite?? As I sit here, looking at him, he looks like he should have already had his surgery. He has 7 meds and food going through his THREE IVS. Plus he gets orally 1 more for heart function, 2 for his kidneys, 2 for the major acid reflux he is having, and 3 antibiotics, Tylenol and gas meds to help him poop. And he has oxygen.
We were never able to leave the ICU because of the new meds they put him on in day 2.
The doctors have been coming in constantly all night, because he also spiked a fever of 102.8 So they did some blood work to look for infection.. the results won't be back for 2 days. In the meantime, they started him on antibiotics.... more meds. And are taking all sorts of addition tests to make sure the heart function isn't going to be affected and getting worse. Our doc keep saying that one minute Jakey looks "okay" or "stable" than just a little bit later he looks really bad.
So its been a hard, scary weekend. And as all the doctors seem to like to point out to me, this is just the beginning and after surgery he is going to look alot worse. So of course I am scared out of my mind. But he is still a fighter. He is so out of it most of the time now, but when the IV team comes or they need to take blood, he still gives it to the nurses. For that I am so very proud of him.. He is not going to just sit back and take things. He is a fighter for life!
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