part 2

Okay, so on with our adventure....

What the doctors saw with the catherzation looked good. The pressure of blood flow was good. The stent looked fine. So nothing else was needed. One of his bands were a little loose though and the stent was closing just a little bit. Afterwards in the ICU he developed an allergic reaction to something. His head and upper body was really red and swollen. And he had a fever of 102. Which for a heart baby is very high and dangerous. No one is really sure what caused the reaction, but thankfully the nurses gave him benadryl and the next day he was fine.

The surgeons said to just watch him closely again. The goal is to make him last for another 4 weeks and than he will be able to have his second surgery. So it looks like July will most likely be his 2nd surgery. We also got instructions for the summer, to keep Jakey out of the heat. They don't even want him to go outside during the day in the summer, only mornings and evening because he won't be able to handle the heat.

Since we have been here they also did some tests to check his liver, kidneys and everything was okay. They changed his meds a little to hopefully make all the organs work better.

Now again holding us back is his eating. The doctors decided he has silent acid reflux. So he is on medicine for that now. Which I think is helping already, but will take up to 2 weeks or so to completely clear.

Hopefully we will be home Saturday. That is the goal. I love the main doctor on Jakey's case this past week, so that makes everything that much better.